Participating Organizations

The AIDS Institute

Alliance for Better Medicine

Alzheimer’s Association

American Association of People with Disabilities

American Chronic Pain Association

American Diabetes Association

American Health Source

American Pain Foundation

American Psychiatric Association

American Society of Consultant Pharmacists

Arthritis Foundation

Asthma and Allergy Foundation of America

California Chronic Care Coalition

California Hepatitis C Task Force

The Carter Center

Children and Adults with Attention-Deficit/Hyperactivity Disorder

Easter Seals

Epilepsy Foundation

FAIR Foundation

Food and Drug Administration, Office of Special Health Issues

Interstitial Cystitis Network

The Jonathan O. Cole Mental Health Consumer Resource Center

Latino Health Advocacy Coalition

Leukemia and Lymphoma Society

Lupus Foundation of America

Men’s Health Network

Mental Health America

National Alliance for Caregiving

National Alliance on Mental Illness

National Association For Continence

National Association of Hepatitis Task Force

National Association of Mental Health Planning and Advisory Councils

National Association of Social Workers

National Coalition for Cancer Survivorship

National Council for Community Behavioral Healthcare

National Health Council

National Kidney Foundation, Inc.

National Medical Association

National Sleep Foundation

Parkinson Pipeline Project

Salud Latina/Latino Health

Society for Women’s Health Research

Veterans Health Council

Vietnam Veterans of America

home > Press Room

Press Room

03.17.08
National Working Group on Evidence Based Health Care Gathers Leaders For Dialogue on Restoring Patient Voice in Healthcare Decision-Making

On March 6 and 7, 2008, the National Working Group on Evidence Based Health Care convened leading experts to promote patient/consumer inclusion in public policy decisions about healthcare.  A two-day forum organized by the Working Group, “Advancing the Evidence of Experience: Practical Issues for Patient/Consumer Inclusion,” brought together healthcare policy-makers, researchers, healthcare providers, payers, and patient and consumer advocates for an open dialogue on the role of patients/consumers in all aspects of the evidence-based healthcare process. Full reports on forum themes and proceedings and a video webcast of both days, is available at: http://www.evidencebasedhealthcare.org/index.cfm?objectid=80363086-1372-4D20-C8275AD1BBB7C263.

 

04.19.07
National Working Group on Evidence-Based Health Care Hosts Consumer Forum

The National Working Group on Evidence-Based Health Care (The Working Group) hosted a public forum on the central role patients should play in evidence-based health care (EBH). The forum featured patient and expert panelists who discussed trends and approaches for including patient insight and preferences in health care decision making. Attendees learned about three approaches to inclusion of patient and consumer perspectives, the U.K.'s National Institute for Health and Clinical Excellence's Patient and Public Involvement Programme, The U.S. Food and Drug Administration's Patient Representative Program and the Agency for Healthcare Research and Quality's Health Effectiveness Program and John D. Eisenberg Clinical Decisions and Communications Science Center. The Working Group plans to translate this discussion into principles to guide all health care decision makers about how to involve patients and consumers in a meaningful way. To hear the audio webcast or for more information visit: http://www.evidencebasedhealthcare.org/index.cfm?objectid=3755440B-1372-4D20-C85553A83DE7E5B4

 

08.01.06
National Working Group on Evidence-Based Health Care Responds to EBM Series in Health Affairs  

In the letter entitled, Balancing Individual Needs with Scientific Evidence,” the Working Group provideHealth Affairs readers with a consumer's perspective on the Drug Effectiveness Review Project (DERP).  By highlighting best practices in other evidence-based review programs, the Working Group makes tangible recommendations for improving the development and use of DERP reports.  The full text of letter is available at http://content.healthaffairs.org/cgi/eletters/25/4/W262.

 

 

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